Tick-Borne Disease Working Group Content

Tick-borne Disease Working Group (TBDWG) Q1 2020 Public Input on Alpha-gal and Other Conditions

Tick-borne Disease Working Group (TBDWG) Q1 2020 Public Input on Alpha-gal and Other Conditions

TBC United was busy in January and February preparing for, presenting to, and partnering with other advocates to help members of Congress (through the Tick-borne Disease Working Group) better under the challenges and funding needs of people suffering with tick-borne illnesses. This article highlights that activity and links to valuable information for diseases sufferers.

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Tick-Borne Conditions and Veterans Experience

Tick-Borne Conditions and Veterans Experience

U.S. Veteran Kenneth Kozak shares his experience with the Veterans Administration in trying to diagnose his tick-borne conditions. It took 3 years and tremendous frustration before learning definitively what he had contracted. Kenneth Kozak was asking the Federal Tick-borne Disease Working Group (TBDWG) for better VA training.

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Parent Advocate Andrea Roseman

Parent Advocate Andrea Roseman

Andrea Roseman is the mother of an Alpha-gal Syndrome patient and an advocate for those with tick-borne illnesses. She represented the Alpha-gal Syndrome Community before the 2020 Tick-Borne Disease Working Group (TBDWG) in Washington, DC. She discussed the need for enhanced medical information and training.

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Patient Advocate Charlotte Meyer

Patient Advocate Charlotte Meyer

Charlotte Meyer is an advocate who represented Tick-borne Conditions United at the 2020 Tick-borne Disease Working Group (TBDWG) meeting in Washington DC. She spoke of the important research being done among Alpha-gal Syndrome patients who hunger for more information related to their disease. She also recounted a number of patient challenges and frustrations for the committee, due to lack of education around the disease. You can view Charlotte’s presentation here.

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