TBC United was busy in January and February preparing for, presenting to, and partnering with other advocates to help members of Congress (through the Tick-borne Disease Working Group) better under the challenges and funding needs of people suffering with tick-borne illnesses. This article highlights that activity and links to valuable information for diseases sufferers.
TBC United Board member and patient advocate Marlene Jones speaks at the 2020 Q1 meeting of the Federal Tick-Borne Conditions Working Group (TBCWG). Stricken with both Ehrlichiosis and Rocky Mountain Spotted Fever, she now advocates for better testing, therapies, cures, and education.
U.S. Veteran Kenneth Kozak shares his experience with the Veterans Administration in trying to diagnose his tick-borne conditions. It took 3 years and tremendous frustration before learning definitively what he had contracted. Kenneth Kozak was asking the Federal Tick-borne Disease Working Group (TBDWG) for better VA training.