Dr. Jennifer Platt, Cofounder of TBC United was recognized by the University of North Carolina for TBC United’s educational efforts around Alpha-gal Syndrome and Covid-19. The article references TBC United’s AGS and COVID-19 portal page and webcasts.
Meat Allergy Content
In this second important live webcast, TBC United Cofounders Dr. Jennifer Platt and Beth Carrison, INHC, are joined by Dr. Tina Merritt to discuss important precautions for Alpha-gal Syndrome patients regarding Covid-19 (Coronavirus). Included is a detailed discussion around medications and how to communicate with healthcare professionals about your conditions. This audio recording was from an April 5, 2020 webcast.
TBC United Cofounders Dr. Jennifer Platt and Beth Carrison, INHC, are joined by Dr. Tina Merritt to discuss important precautions for Alpha-gal Syndrome patients regarding Covid-19 (Coronavirus). Included is a discussion around medications, how to communicate with healthcare professionals during the pandemic, and where to find additional resources. This audio recording was from a March 29, 2020 webcast.
TBC United Cofounder Dr. Jennifer Platt discusses the challenges of daily life for a person with a tick-borne illness, including the fear that a hotel or hospital cafeteria will include hidden meat products.
U.S. Veteran Kenneth Kozak shares his experience with the Veterans Administration in trying to diagnose his tick-borne conditions. It took 3 years and tremendous frustration before learning definitively what he had contracted. Kenneth Kozak was asking the Federal Tick-borne Disease Working Group (TBDWG) for better VA training.
Teen advocate Grant Roseman shares his experience of having Alpha-gal Syndrome for 8 years during the 2020 Tick-borne Disease Working Group meeting. Grant Roseman is a Missouri Science Fair award winner.
Andrea Roseman is the mother of an Alpha-gal Syndrome patient and an advocate for those with tick-borne illnesses. She represented the Alpha-gal Syndrome Community before the 2020 Tick-Borne Disease Working Group (TBDWG) in Washington, DC. She discussed the need for enhanced medical information and training.
Charlotte Meyer is an advocate who represented Tick-borne Conditions United at the 2020 Tick-borne Disease Working Group (TBDWG) meeting in Washington DC. She spoke of the important research being done among Alpha-gal Syndrome patients who hunger for more information related to their disease. She also recounted a number of patient challenges and frustrations for the committee, due to lack of education around the disease. You can view Charlotte’s presentation here.
Podcast discussion from Lyme Ninja Radio with Beth Carrison, Cofounder of TBC United, on what it means to have Alpha-gal Syndrome and how to adjust if you have it. Key takeaways include how to protect yourself, why setting up a support network is crucial for healing, and how sharing your experience can take years off of someone’s suffering.
Tick-Borne Conditions United Cofounders Dr. Jennifer Platt and Beth Carrison team with TBCU Board Member Dr. Tina Merritt to provide guidance to those with Alpha-gal Syndrome on what ingredients to avoid in food, medicines, and other personal care products. Diagnosis is also covered and the key areas of support required for AGS patients of all ages. Additional focus is on dietary needs, how to be an ingredient detective, pharmaceutical considerations, and social challenges.