These are trying times. Aside from disparities in social acceptance and criminal justice for people of color, there are differences in healthcare. TBC United is committed to eliminating the disparities in tick-borne conditions research, education, diagnosis, treatment, and advocacy for people of color. We need your help to improve our research.
Lyme disease Content
Podcast discussion from Lyme Ninja Radio with Dr. Jennifer Platt, Cofounder of TBC United and CEO of TickWarriors, on how to protect yourself, and your family, pets, and property against tick bites as Spring emerges in many parts of the country. Includes detailed discussions about ticks and the best, safest products to use for protection.
TBC United was busy in January and February preparing for, presenting to, and partnering with other advocates to help members of Congress (through the Tick-borne Disease Working Group) better under the challenges and funding needs of people suffering with tick-borne illnesses. This article highlights that activity and links to valuable information for diseases sufferers.
TBC United Board member and patient advocate Marlene Jones speaks at the 2020 Q1 meeting of the Federal Tick-Borne Conditions Working Group (TBCWG). Stricken with both Ehrlichiosis and Rocky Mountain Spotted Fever, she now advocates for better testing, therapies, cures, and education.
U.S. Veteran Kenneth Kozak shares his experience with the Veterans Administration in trying to diagnose his tick-borne conditions. It took 3 years and tremendous frustration before learning definitively what he had contracted. Kenneth Kozak was asking the Federal Tick-borne Disease Working Group (TBDWG) for better VA training.
Podcast discussion from Lyme Ninja Radio with Beth Carrison, Cofounder of TBC United, on what it means to have Alpha-gal Syndrome and how to adjust if you have it. Key takeaways include how to protect yourself, why setting up a support network is crucial for healing, and how sharing your experience can take years off of someone’s suffering.
Jennifer Platt, DrPH, cofounder of Tick-Borne Conditions United, is interviewed by KUAF Radio on the recently passed Kay Hagan Tick Act. The law was named after U.S. Sen. Kay Hagan of North Carolina who died last autumn due to complications from a tick-borne illness. The measure will facilitate development of a national strategy to combat tick diseases and fund medical research and educational outreach.
Podcast discussion on the complexities of Lyme Disease featuring Dr. Jennifer Platt, Cofounder of Tick-borne Conditions United and CEO, TickWarriors, speaking with Aaron & Sarah Sanchez of LymeVoice. Released: Nov 26, 2019. How to protect people, pets, and property from ticks. Dr. Jennifer Platt has decades of experience in public health and environmental program development. She has led the creation of nationally recognized, award-winning education programs and has spoken extensively to audiences of all sizes.
The S1657 Kay Hagan TICK Act is currently making its way through the halls of Congress. It will provide millions of dollars for desperately needed research, surveillance, and education. To help honor Senator Kay Hagan and others with tick-borne illnesses, please call your Senators to ask for their support of the S1657 Kay Hagan TICK Act.
Tick-Borne Conditions United (TBC United) co-founder, Beth Carrison, INHC has been appointed to the Alpha-gal Syndrome (AGS) Subcommittee of the 2020 Tick-borne Disease Working Group (TBDWG). This means that individuals affected with Alpha-gal Syndrome can have their concerns and needs potentially raised before Congress.