Teen advocate Grant Roseman shares his experience of having Alpha-gal Syndrome for 8 years during the 2020 Tick-borne Disease Working Group meeting. Grant Roseman is a Missouri Science Fair award winner.
Alpha-gal Syndrome Content
Andrea Roseman is the mother of an Alpha-gal Syndrome patient and an advocate for those with tick-borne illnesses. She represented the Alpha-gal Syndrome Community before the 2020 Tick-Borne Disease Working Group (TBDWG) in Washington, DC. She discussed the need for enhanced medical information and training.
Charlotte Meyer is an advocate who represented Tick-borne Conditions United at the 2020 Tick-borne Disease Working Group (TBDWG) meeting in Washington DC. She spoke of the important research being done among Alpha-gal Syndrome patients who hunger for more information related to their disease. She also recounted a number of patient challenges and frustrations for the committee, due to lack of education around the disease. You can view Charlotte’s presentation here.
Podcast discussion from Lyme Ninja Radio with Beth Carrison, Cofounder of TBC United, on what it means to have Alpha-gal Syndrome and how to adjust if you have it. Key takeaways include how to protect yourself, why setting up a support network is crucial for healing, and how sharing your experience can take years off of someone’s suffering.
Jennifer Platt, DrPH, cofounder of Tick-Borne Conditions United, is interviewed by KUAF Radio on the recently passed Kay Hagan Tick Act. The law was named after U.S. Sen. Kay Hagan of North Carolina who died last autumn due to complications from a tick-borne illness. The measure will facilitate development of a national strategy to combat tick diseases and fund medical research and educational outreach.
Tick-Borne Conditions United Cofounders Dr. Jennifer Platt and Beth Carrison team with TBCU Board Member Dr. Tina Merritt to provide guidance to those with Alpha-gal Syndrome on what ingredients to avoid in food, medicines, and other personal care products. Diagnosis is also covered and the key areas of support required for AGS patients of all ages. Additional focus is on dietary needs, how to be an ingredient detective, pharmaceutical considerations, and social challenges.
A Mysterious Allergy, the UNC Researcher Who Helped Figure It Out, and the Cloned Pigs That Could Be the Answer. This IndyWeek article from November 2019 covers the story. It includes the important research of the University of North Carolina’s Dr. Scott Commins, plus the effort by Revivicor to produce an Alpha-gal safe pork product. Includes comments from Tick-borne Conditions United Cofounder Beth Carrison, INHC.
Chatham County has become a hotspot for Alpha-gal Syndrome and other tick-borne illnesses. The Chatham County Public Health Department says the county has one of the highest rates of tick-borne illness in North Carolina at 8.3 percent. Of that group, just under 15 percent were diagnosed with Alpha-gal syndrome. Dr. Jennifer Platt, Cofounder of TBC United and CEO of TickWarriors was interviewed to provide perspective on these concerning trends.
Tick-Borne Conditions United (TBC United) co-founder, Beth Carrison, INHC has been appointed to the Alpha-gal Syndrome (AGS) Subcommittee of the 2020 Tick-borne Disease Working Group (TBDWG). This means that individuals affected with Alpha-gal Syndrome can have their concerns and needs potentially raised before Congress.
The Lowell Sun interviews TBC United Cofounder Beth Carrison about her challenging journey to discovery that she had the Alpha-gal meat allergy. Too little is known about this debilitating condition by medical professionals, so considerable personal research and education is often required by those afflicted in order to protect oneself. The article also recounts Beth Carrison’s process of teaming with Dr. Jennifer Platt to cofound Tick-Borne Conditions United.