It’s official! Patients with Alpha-gal Syndrome (AGS) have long suspected that their allergy was caused by a tick bite, but it has been difficult to scientifically validate - it’s not ethical to make people get tick bites and see if…
Farewell 2022! Happy New Year! Despite all the challenges of 2022, we accomplished some major milestones here at Tick-borne Conditions United. This year we: AGS Patient Symptoms and Experiences Survey Presented our latest AGS Patient Symptoms and Experiences Survey results at the…
Thanks to the work of the Council of State and Territorial Epidemiologists (CSTE), there is now a standardized case definition for Alpha-gal Syndrome (AGS). The use of a common definition allows comparison across states that track AGS. (This is a…
Our work and advocacy has made national news! Dr. Jennifer Platt was interviewed recently by the New York Times. Read all about it at https://www.nytimes.com/2022/05/13/us/lone-star-tick-bite-meat-allergy.html Sincerely, Beth and Jennifer Beth Carrison, INHC CoFounder and Director of Advocacy Jennifer Platt, DrPH…
Exciting news! Yesterday the federal Tick-borne Disease Working Group (of which TBCU CoFounder Dr. Jennifer Platt is a member) voted to include the recommendation to ask Congress to require labeling of mammalian ingredients in foods and other products. This recommendation…
Healio reporter, Alexandra (Sasha) Todak contacted TBC United to learn more about the Alpha-gal Syndrome Patient Experience Survey results presented at the 2022 Annual American Academy of Allergy, Asthma & Immunology (AAAAI) Conference, March 1st, in Phoenix, AZ. “Patients with…
The Alpha-gal Syndrome Patient Experience Survey We’re pleased to announce that TBC United’s Alpha-gal Syndrome Patient Experience Survey was presented today at the American Academy of Allergy, Asthma & Immunology, 2022 Annual Conference, held in Phoenix, AZ! The AGS Patient…
Next week the federal Tick-Borne Disease Working Group (TBDWG) will meet online Monday 2/28 and Tuesday 3/1. The Working Group will hear Public Comments at 10:10 and afterward will begin to hear presentations by each of the six subcommittees listed…
Alpha-gal Syndrome ICD-10-CM: Z91.014 Z91.014 – Allergy to mammalian meats Until recently, healthcare providers didn’t have a designated medical diagnosis (ICD-10-CM) code available to track the rapidly growing allergy to sugar molecule galactose alpha-1, 3 galactose, otherwise known as Alpha-gal…
Congratulations to TBCUnited CoFounder, Dr. Jennifer Platt on her appointment to the Department of Health & Human Services' Federal Tick-Borne Disease Working Group (TBDWG). The congressionally-directed committee will write the 2022 Report to Congress. For more information about the Working…