Alpha-gal Syndrome Content

A Message from the Cofounders

These are trying times. Aside from disparities in social acceptance and criminal justice for people of color, there are differences in healthcare. TBC United is committed to eliminating the disparities in tick-borne conditions research, education, diagnosis, treatment, and advocacy for people of color. We need your help to improve our research.

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Alpha-gal Syndrome and COVID-19 — Free Download

Alpha-gal Syndrome and COVID-19 — Free Download

TBC United has created this valuable resource to help you, and your medical providers, to get expert-led guidance regarding Alpha-gal Syndrome and COVID-19. In particular, the brochure covers 7 medications in testing or approved for use that may have implications for Alpha-gal patients. You can download this two-page brochure here.

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Covid-19 and Alpha-gal Syndrome Webcast (040520)

Covid-19 and Alpha-gal Syndrome Webcast (040520)

In this second important live webcast, TBC United Cofounders Dr. Jennifer Platt and Beth Carrison, INHC, are joined by Dr. Tina Merritt to discuss important precautions for Alpha-gal Syndrome patients regarding Covid-19 (Coronavirus). Included is a detailed discussion around medications and how to communicate with healthcare professionals about your conditions. This audio recording was from an April 5, 2020 webcast.

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Covid-19 and Alpha-gal Syndrome Webcast (032920)

Covid-19 and Alpha-gal Syndrome Webcast (032920)

TBC United Cofounders Dr. Jennifer Platt and Beth Carrison, INHC, are joined by Dr. Tina Merritt to discuss important precautions for Alpha-gal Syndrome patients regarding Covid-19 (Coronavirus). Included is a discussion around medications, how to communicate with healthcare professionals during the pandemic, and where to find additional resources. This audio recording was from a March 29, 2020 webcast.

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Tick-borne Disease Working Group (TBDWG) Q1 2020 Public Input on Alpha-gal and Other Conditions

Tick-borne Disease Working Group (TBDWG) Q1 2020 Public Input on Alpha-gal and Other Conditions

TBC United was busy in January and February preparing for, presenting to, and partnering with other advocates to help members of Congress (through the Tick-borne Disease Working Group) better under the challenges and funding needs of people suffering with tick-borne illnesses. This article highlights that activity and links to valuable information for diseases sufferers.

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Tick-Borne Conditions and Veterans Experience

Tick-Borne Conditions and Veterans Experience

U.S. Veteran Kenneth Kozak shares his experience with the Veterans Administration in trying to diagnose his tick-borne conditions. It took 3 years and tremendous frustration before learning definitively what he had contracted. Kenneth Kozak was asking the Federal Tick-borne Disease Working Group (TBDWG) for better VA training.

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