The Alpha-gal Syndrome Patient Experience Survey We’re pleased to announce that TBC United’s Alpha-gal Syndrome Patient Experience Survey was presented today at the American Academy of Allergy, Asthma & Immunology, 2022 Annual Conference, held in Phoenix, AZ! The AGS Patient…
Alpha-gal Syndrome ICD-10-CM: Z91.014 Z91.014 – Allergy to mammalian meats Until recently, healthcare providers didn’t have a designated medical diagnosis (ICD-10-CM) code available to track the rapidly growing allergy to sugar molecule galactose alpha-1, 3 galactose, otherwise known as Alpha-gal…
Congratulations to TBCUnited CoFounder, Dr. Jennifer Platt on her appointment to the Department of Health & Human Services' Federal Tick-Borne Disease Working Group (TBDWG). The congressionally-directed committee will write the 2022 Report to Congress. For more information about the Working…
Thank you to the Washingtonian for helping to raise awareness. This article highlights many voices concerned about ticks and alpha gal syndrome, from patients (including Beth Carrison) to professors to public health experts (including Dr. Jennifer Platt) to physicians. In…
The 2020 Report to Congress is here! Since 2016, the federally-appointed Tick-Borne Disease Working Group has released a bi-annual Report to Congress. In this report, we are encouraged to see much needed attention on the lesser known tick-borne conditions such…
And that's a wrap! Despite all the challenges of 2020, we accomplished some major milestones here at Tick-borne Conditions United. Watch our 2020 Year in Review video above. In 2020 we: Coordinated multiple public input presentations to the Tick-borne Disease…
Dear Friends of Tick-borne Conditions United: So much has happened over the past few weeks in our world. The COVID-19 pandemic has magnified minority health disparities, while incidents of police misconduct and brutality have provided the catalyst for much needed…
TBC United Covid-19 and Alpha-gal Syndrome Resources Dr. Jennifer Platt, Cofounder of TBC United was recognized by the University of North Carolina for TBC United’s educational efforts around Alpha-gal Syndrome and Covid-19. Jennifer is a graduate of the UNC Gillings…
Tick-borne conditions advocates take a time-out at the Tick-borne Disease Working Group (TBDWG) Q1 2020 meeting. Left to right are Grant Roseman, Andrea Roseman, and Dr. Scott Commins, University of North Carolina. Includes Important Links To Sub-Committee Reports On Alpha-Gal…
David (Patient) Meets Goliath (Health Provider) To gain a rapid assessment of the top concerns of patients with Alpha-gal Syndrome (AGS), Tick-borne Conditions United (TBCU) conducted a survey in early August 2019. This survey was sent via e-mail to newsletter…