Life-Threatening Challenges of Ehrlichiosis and Rocky Mountain Spotted Fever
Marlene Jones - TBDWG - Ehrliciosis - Ricketsios Amblioymatis
TBC United board member Marlene Jones shares her heart-wrencning, and near death experience with Ehrlichiosis and “Ricketsios Amblyommatis”. “I got sick on a Monday, and by Saturday, my third trip to the Urgent Care, I was told I they did not know if I would live or die.”Ten days in the hospital, fighting for my life, a six month recovery, it was Ehrlichiosis. The second time, my doctor and I recognized the symptoms and prescribed doxycycline.Marlene was stricken again, in the spring of 2019, this time with “Rickettsiosis Amblyommatis and an unknown confection”. After she was treated unsuccessfully with doxycycline, she suffered “a severe relapse”. The “bacteria had gone into her brain, causing screaming headaches, exhaustion and confusion” and took two months to recover.According to her doctor at the Infectious Disease Clinic at UNC, “It cross reacts with the existing tests for R. Rickettsiosis, RMSF which confounds our understanding of both clinical symptoms and epidemiology.“Marlene urged the Working Group to address the need for “immune therapy and other cures” than antibiotics. “We need accurate and timely tests, before we are dead.” Marlene’s doctor found that “Ehrlichiosis is likely to be as common as RMSF in North Carolina”. More healthcare provider education is needed to identify the vague and difficult to articulate symptoms, appropriate tests and treatments to combat the infection(s) early and accurately.The one symptom that stands out to Marlene is “a sense of desperation. You know you have to go to a doctor, and you go again and again to the urgent care.”To receive more information about the lesser known tick-borne conditions, upcoming educational opportunities, or to donate, please visit https://tbcunited.org/contact-us/ or email us at firstname.lastname@example.org.#RMSF#RickettsiosAmblyommatis#Ehrlichiosis#TickBorne#TBDWG#HelpNeeded#StrongerTogetherAccording to one report found in the US National Library of Medicine, (2016) “The bacterium was never formally named, despite the use of the designation ‘Rickettsia amblyommii’ and later ‘Candidatus Rickettsia amblyommii’, for more than 20 years in the scientific literature.” . See: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5893998/ for more information.Posted by TBCUnited on Sunday, 2 February 2020
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